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Cane Fane Battling Liver Rejection. Please Help!

Orig.CaneSawMassacre said:
Just an update for everyone. Still in the hospital. They’re trying to hold off running another liver biopsy because my numbers are trending in the right direction right now.

Trying to figure out if I’m fighting some sort of infection along with the rejection.

Keep me in your prayers!
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Sorry to hear this news - was hoping for a better update. 🙁

Stay strong! 💪🏻 You are definitely in our prayers!
 
So liver enzymes spike back up again today. Unfortunately, so it looks like we are going to be doing another liver biopsy. I have an MRI right now. Liver biopsy sometime later today hopefully.

Keep me in your thoughts and prayers guys!

Go Canes!
 
Orig.CaneSawMassacre said:
Grrr. Liver biopsy likely not happening u til tomorrow but at least they got the MRI done today.

Day 5 in here this time around. Ready to go home.
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I'm so sorry, friend. Being in the hospital is the worst, especially when you don't have an end date in sight.

Are you getting any sleep at all? Are they still treating you well?

Sending more prayers today and will keep them going! Try to stay strong! 🙏 :neonu:
 
caneingville said:
I'm so sorry, friend. Being in the hospital is the worst, especially when you don't have an end date in sight.

Are you getting any sleep at all? Are they still treating you well?

Sending more prayers today and will keep them going! Try to stay strong! 🙏 :neonu:
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Advent Orlando Transplant team is amazing!

Sleep at the hospital is non existent but I’m having the liver biopsy tomorrow. The MRI came back with blocked ducts in the liver so now I’m just curious what the plan of attack is.

I actually feel pretty well considering.

Thank you for the kind words!

Your 9 year old is right in the heart of the season? What position does he play and what is the record so far?

Go Canes!
 
Just an update. The 2nd liver biopsy came back today showing more rejection. They have me on heavy IV steroids which is messing with my blood sugar. So now I’m also getting insulin shots.

Not sure what the plan is if the steroids don’t work but it will be a week tomorrow in here again and the doctor is saying at least 3/4 more days.

I’m so grateful to all who have donated or shared. Especially appreciative of all the kind words while Ove been in here.

For anyone just seeing this now if you can’t donate please share the gofundme link with your community or local churches that might be able to help. God Bless! Go Canes!
 
Orig.CaneSawMassacre said:
Advent Orlando Transplant team is amazing!

Sleep at the hospital is non existent but I’m having the liver biopsy tomorrow. The MRI came back with blocked ducts in the liver so now I’m just curious what the plan of attack is.

I actually feel pretty well considering.

Thank you for the kind words!

Your 9 year old is right in the heart of the season? What position does he play and what is the record so far?

Go Canes!
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So glad they are good to you - it really makes such a huge difference. Sucks that you aren't getting any sleep, but I kinda figured that was the case, and at least you are feeling okay.

And I'm so sorry to hear about the biopsy results. More medicine on top of more medicine on top of more medicine is always a nightmare. Fingers crossed that there is a light at the end of the tunnel soon!

Did you get to watch a lot of games this weekend? Was a good one for us to have a bye with all the upsets. 🤣

And unfortunately, my son's season looks to be winding down in the next few weeks as they won't be making the playoffs this year. They are 0-7 with just two more weeks left. It's a good learning experience for him though, as it's the first year he hasn't been to the championship (he's been taking it very well!). This year he plays DT, but he has also played C / LT / LG too. He prefers defense though, because he loves to tackle.

🙏:neonu:
 
caneingville said:
So glad they are good to you - it really makes such a huge difference. Sucks that you aren't getting any sleep, but I kinda figured that was the case, and at least you are feeling okay.

And I'm so sorry to hear about the biopsy results. More medicine on top of more medicine on top of more medicine is always a nightmare. Fingers crossed that there is a light at the end of the tunnel soon!

Did you get to watch a lot of games this weekend? Was a good one for us to have a bye with all the upsets. 🤣

And unfortunately, my son's season looks to be winding down in the next few weeks as they won't be making the playoffs this year. They are 0-7 with just two more weeks left. It's a good learning experience for him though, as it's the first year he hasn't been to the championship (he's been taking it very well!). This year he plays DT, but he has also played C / LT / LG too. He prefers defense though, because he loves to tackle.

🙏:neonu:
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I am keeping spirits high and hoping these doses of medicine do the trick!

Yes I was able to watch most of the games. It was a great weekend for upsets.

Would have loved to see Indiana fall but they play OSU next week so we will see who is the real deal.

Shame with your son’s team. I was pretty blessed in little league myself. We went to the championship every year. Only lost one. I had my first losing season my junior year of high school, it’s probably a good thing he got that taste early. I wasn’t a very good loser with my first experience.

Thank you for all the support! Go Canes!
 
I’m getting a “502 Bad Gateway” message when clicking on the go fund.me link, anyone have a better way of going to the site?
 
Orig.CaneSawMassacre said:
Really? I reattached a link below. Thank you for even looking! Go Canes!

gofund.me

Donate to Help Kenny Through Liver Rejection Fight, organized by Kenny Disalvo

My name is Kenneth Disalvo. I’m a father of two from Lake Placid, Florida, and … Kenny Disalvo needs your support for Help Kenny Through Liver Rejection Fight
gofund.me gofund.me
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My bad brother! It failed again, then realized I have a VPN🙄. Turned it off and took care of it. Get well soon, prayers up for you!
 
I just want to say Thank You again to @DMoney and the whole Caneinsight family. I am truly honored and humbled by all of your donations and support!

It has been absolutely a miracle in this stressful time! But beyond that your kind words, prayers, and the back and forth Canes-football dialogue has been what’s keeping me going (aside from my beautiful children)!

I honestly don’t know what I would be doing without you guys!

Much Love ❤️! As always Go Canes!!!
 
Orig.CaneSawMassacre said:
I am keeping spirits high and hoping these doses of medicine do the trick!

Yes I was able to watch most of the games. It was a great weekend for upsets.

Would have loved to see Indiana fall but they play OSU next week so we will see who is the real deal.

Shame with your son’s team. I was pretty blessed in little league myself. We went to the championship every year. Only lost one. I had my first losing season my junior year of high school, it’s probably a good thing he got that taste early. I wasn’t a very good loser with my first experience.

Thank you for all the support! Go Canes!
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Sounds like you got pretty spoiled with all that success! 🤣 But he’ll be okay. Basketball starts very soon. You have kids too?

I forgot that Indiana and OSU are playing this weekend - thank you for the reminder! I’m also stoked for the ND and BYU game. And ours, of course.

So happy you’re still in good spirits. Sometimes, just staying positive, as hard as it is, can help so much. 🙏 We’ll keep doing our part.
 
caneingville said:
Sounds like you got pretty spoiled with all that success! 🤣 But he’ll be okay. Basketball starts very soon. You have kids too?

I forgot that Indiana and OSU are playing this weekend - thank you for the reminder! I’m also stoked for the ND and BYU game. And ours, of course.

So happy you’re still in good spirits. Sometimes, just staying positive, as hard as it is, can help so much. 🙏 We’ll keep doing our part.
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Yes I have a 12 year old son and my baby girl turns 9 November 1st on all Saints Day!

Unfortunately my son who splits time with his mother has the video game bug right now more than football.

In all fairness to him though I was sick for a good part of his life. We just started throwing the football the last couple years after I got the transplant.

He has just started to watch Canes games with me. I was hoping to take them to their first canes game this year but that might have to be placed on hold depending on health and finances.
 
Orig.CaneSawMassacre said:
Yes I have a 12 year old son and my baby girl turns 9 November 1st on all Saints Day!

Unfortunately my son who splits time with his mother has the video game bug right now more than football.

In all fairness to him though I was sick for a good part of his life. We just started throwing the football the last couple years after I got the transplant.

He has just started to watch Canes games with me. I was hoping to take them to their first canes game this year but that might have to be placed on hold depending on health and finances.
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I 100% understand. I had some pretty severe pregnancy complications, including a stroke, a heart attack, and a whole bunch of other really bad things that permanently disabled me. My husband did everything for my son when he was a baby, and I don't even have any memories of my son's first couple years. My son only knows me like this, and is used to me not being able to do things and go to his games. It sucks and I have so much mom guilt over it, but my husband is always trying to encourage me and show me all the other ways I'm a good mom even if I can't always physically be there. It helps, but I will always beat myself up about it. I'm sure that your situation is similar and you're still doing great because it sounds like you're trying to connect with him, but I get that you feel bad. We can't help but want to do the best for our kids.

Are there games you can play with him? My kid likes gaming too, and although I don't (and can't) play the more complex stuff, we like to play small games together, like online Scrabble or emoji word games. I'm sure there are a ton more, and probably other ones your son might be into for older kids.

Happy birthday to your sweet girl!
 
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